It seems I’m not the only one feeling a bit cynical about Light it up Blue for Autism today. Especially given the amount of money raised specifically just to light buildings with a blue light, AND doing so is apparently meant to make us autie parents feel better, less alone and the world better informed.
The autie mum in me is all for the Autism Awareness awareness campaign, I really am I WANT to be shaking that tambourine and I usually do. Last year we raised $600 for autism awareness, but as someone who is always desperately clawing for services seeing money obviously wasted shits me, especially such a large sum (40 grand if you haven’t clicked the links above) I think we can all come up with at least 20 services that the money could’ve been spent on. Wouldn’t it be fantastic to see such crowd sourced fundraising enthusiasm for other causes?
Autism awareness campaigns are necessary. I deal with ignorance from somebody every other day, and not just from strangers, friends and family too. Autism isolates families. However I have always felt the people that are unaware of what autism means for a family or child, are people that we don’t need to have in our lives.
Here is my symbol of Autism, my four autie babies I decided that they need a rainbow instead of being blue, because they’re anything but blue.
So while the parents of high functioning autie kids get to go to balls and dos tonight, sans kids because they CAN get someone to care for their child. I hope they spare a thought for us autie parents with kids on the other end of the spectrum, who are sitting at home with their non verbal and incontinent teenagers, scrubbing poop out of the carpet for the third time today. Put that on a flag and wave it.
If you wish to help out an organisation that provides services for Autism, head to ASPECT and check out their fundraising effort.
Some of you reading will disagree with me, and feel that the blue lights are important, and to those who hold that sentiment I have no doubt it is important. To you. I don’t take issue that awareness is not important, I just snapped at the cash wasted on brighter lights than those offered. That 40 grand could have sent a lot tired autie mums to a spa for the day… just saying
To all my friends who lit their facebook pages up blue, wore blue, shared awareness info, had blue lunches, and blue events today, lit their offices windows up blue tonight, I thank each and everyone of you for taking on the cause. Don’t let my crankiness dampen your enthusiasm, I am really grateful you care.
I will continue my autism awareness campaign right here on my blog, and hope that whatever I spew out into written words can help someone know that they really are not alone, because unlike a blue light you can reach out and contact me.