Category Archives: Husbands

I’d like my walking frame in green thanks.

While I don’t like to conform, I think that a 2013 round up post is in order. It’s been a very crappy year, and feel you all need to hear why I’ve been a bit hard to find or get to do anything, or just be anything really.  I’m not quite sure how to lay it all out, an outright tally of the ugly would be an absolute bummer to read, but hey that what most blogging is about? Drama 😉  Although it could be cathartic to unload, out there to the cyberworld. Certainly cheaper than therapy. From what I hear 2013 has been a pretty crappy year for most people I know, and just when one shit event is done with another one comes along.  Karma it seems, has taken the year off.

We all have our crap threshold. However big or small, we all have limits. There is only so much a person can take before they crack  it. I have lost count of how many times this year I wanted to chuck an Eric Cartman, “screw you guys I’m going home”.

Flash back to February when I got the up the notion of obtaining some part time employment, I decided I wanted to be a firefighter. I lost a pot load of weight and got fit, and I got the job.  Dropped a ladder on my head during an assessment, and found out that I have neck bones that will no longer take a beating.  Bugger.  Back on went the weight while I tried to rest it, yeah even the doctor laughed at that idea of me ‘resting’.

Meanwhile I was working on the assessment stuff for our latest autistic addition, the paperwork just gets bigger and bigger as the years go by. I think I spent at six months sorting his stuff out alone. For our very first diagnosis we got one report and that was it, I miss the days when a paediatricians word was good enough.  Also had to get the Future Dark Overlord reassessed so he could keep his place at school.  I really need a PA just to keep a handle on all these assessments and reports for me.  It’s been a busy damn year for kid corro that’s for sure.

And then my doggies died.   Followed by a rather spectacular car smash, in which my mum and eldest son sustained head injuries and end up airlifted in different directions. Thankfully they pulled up ok, the car didn’t and mum learnt a valuable lesson about the insurance (that she really should have had some!).

The much narrower Ford

We carried on. We kept seeking out the good stuff. Taking the kids camping and looking for the fun stuff. As far as the kids are concerned this has been a rocking year, thank god the parental smoke screen is holding.  We even adopted another dog, a Greyhuahua (which is totally a real duel breed name).

And then I got sick.  Really sick with an antibiotic resistant infection, after being treated with the biggest anti’b tablets you’ll ever see I slowly got better.  But, and you saw that big ol’ but coming didn’t you, the treatment damaged my hearing permanently.   So before I turn 40 I’m wearing hearing aides, yes that deaf.  I knew I was having trouble hearing the kids, but I thought that was only because they all have to talk at once.  Interesting side note here is my audiologist can download the levels of noise I am exposed to while wearing them, she said she has never seen any patient with so much everyday noise. She no longer scolds me for not wearing them as much as I should.

In the background leg work for my autie kids continued.  Never ending and always keeping me busy, how did I think I was going to have time to do a job?!  I don’t think I can adequately convey just how much ‘stuff’ my kids generated this year, it was almost overwhelming.

We decided we needed to relax, the worst was over right?  And we went over to the coast and one day we had fish and chips at our favourite take away.  When I had an allergic reaction to fish. Having never reacted to it before, I was unprepared but lived to tell the tale.  Remember the big ass antibiotics?  Turns out they’ve messed with my bodies ability to process histamines and a whole bag of other really awesome foods.  Suddenly I can’t eat a lot of things. So I now have an audiologist and an immunologist. Uh huh.  But it was this or kidney failure, so you know…

Just today I bought myself some glucosamine for the arthritic joints, and made a mental note of what colour walking frame I’d like. A green one in case you’re wondering, it would’ve been red but that colour just gives way to the expectation that I can go faster and you and I both know with my luck I’ll have a hip replacement next year.

As a sense of normal finally seemed to settle on the house our eldest autie boy decided to spice things up with a seizure. A big one. So big his heart stopped. We are racking up the frequent flyer miles in the careflight helicopters.

Getting ready for his airlift. Poor Tom.

The pilot remembered us from the last trip, he didn’t even have to tell me how to work my headset. This time I kept my phone handy to take some aerial shots, as you do.

 

It had been a year exactly since he’d had one, so I’m not booking anything for this coming september just in case its a seasonal thing 😉  It took about a month to get him back on track and we are continuing to treat it as a seizure disorder.

We got home from the hospital just in time for the Husband to fly out to Vietnam, as it is his turn for a holiday this year.  Probably a good thing it was his turn, because I’m pretty sure had I had some plane tickets, you may not have seen me on these shores again for some time.  But things did settle, aside from the usual chaos, and we set off on holiday to celebrate fifteen years married. Rented ourselves a flash beach house at Narooma, and quite probably had the best time we’ve had all year, even if we did take all the children 😉

We saw a seal colony for the first time at Narooma. Loved it!

The very next day after we get home, I had a head on car smash with a lady who had decided to drive off her face on drugs, past a school.  Probably a good thing she ran into to me really, but still I really didn’t need my new car written off or my shoulder all hurty.

MY BABY!!!!

While the car was insured and replaceable, we encountered untold drama getting the paperwork sorted.  If something could be sent in the wrong direction, it would be. But the biggest drama was our autie kids dealing with the car being gone, I didn’t expect them to cry for days about it.  In the middle of all this drama, the Husband received an award for Life Saving from the Governor General, and we’re all just a little bit proud of that. And my eldest made it through his first lot of army training and is now an official soldier, I’m very happy he is such a together kid who reminds me everyday just how old I am getting.

My big boy :)

A month on we finally have cars in the driveway and money back in the bank, a very trying christmas looked to be on the cards.  However the one intelligent thing I did this year was lay-by the kids christmas gifts in March, Ms Santa came to one and all.  Even if she did get the parcels in the post a little late 😉

Our crowd, sans my eldest.

Now here we are it’s new years eve, the end of this yucky ass year, but we’re still all here!  I have expectations of 2014, and while they say expectation is the root of all disappointment, we all need to have something to hope for right? Even if it’s just for the year to be a none event.  So if the apocalypse could just hold out until 2015 that’d be great, I’ll be too tired to deal with it next year.

I’ll leave you all with this quote from Doctor Who to end the year on.  I think it fits us nicely.  Thank you all for reading this far, and to those of you who have supported us this year we thank you xxx

I'm sorry I don't know who to credit for this, please let me know if it's you're fabulous drawing.

It hasn’t been all bad, just bad enough to keep us too busy 😉

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Filed under Autism, Complaints Dept, Health, Holidays, Husbands, Rants & Stuff, Too Much Information

Getting organised for baby.

A little while ago I contributed to Essential Baby and Elevits; Guide to Conceiving.  Here is the end result!  Please read, I hope you enjoy.  Click on the picture to be taken to the article or download a full copy of the guide here.

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Filed under Babies, Husbands, Pregnancy & Birth

Our little autie tourists.

Every year I say the same thing… I’m never (ever ever ever) taking all these kids on holidays ever again… and yet here I am just back from holiday with all the minions, when will I learn?

But hey I can’t sit at home thinking these kids are going to make any trip a nightmare (even if they have a LOT of form for doing so).  I have to try to have a holiday break, you never know when they (the minions) may get their shit together and behave.

So this summer break we made an effort to get out there and do holiday stuff, like people with neuro-typical kids get to do.  Yes it was probably going to suck, and it was highly likely that our children would reduce us, tour operators, zoo keepers and our holiday neighbours to tears.  But we simply had to try.  Not to prove anything to anyone, not even ourselves, we just have to find a way to feel like a family on holidays.  Too often the Husband and I do activities separately, because one of us will have to stay back with the children that won’t cope with an activity.  You can imagine how much fun this is for the parent left behind.

Last week we went over to the South Coast, and what’dya know they kind of kept it together.  They even stayed in their seat belts for the three-hour car ride, that has never happened before, I’m usually looking for duct tape half an hour in.  We even dared to take them on a Dolphin watching cruise, that went okay – well as okay as confining six kids on a boat with 30 strangers, three of those kids having sensory issues and the wind blowing at around 20 knots, could go – we sailed around Jervis Bay for two hours saw two dolphins.  It has been something we’ve meant to do for years, but have let these kids hold us back.

This past year the Husband and I had a bit of a revelation, we worked out that we were not having any fun, because we didn’t want to try to get out there and do things with our kids that everybody else gets to do with their kids. I’ve talked about this before, I can’t just go to the shop for a loaf of bread when I have an autistic child, I HAVE to plan it.  I also have to my runners on for when the kid absconded.  This is the price of Autism for a lot of families, well we’ve had enough.

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Filed under Autism, Holidays, Husbands, The Kids

Running, Red shirts and the runs.

You know how sometimes things seem to be on a roll, when it comes to a run of bad luck.  I’ve had one of those months, I think August can just take a hike now.   I’m not going to bring you down with the details, ok maybe just a few but hey this is my blog to do with as I please 😉   The pressure has been on this month, with lots of requests (if I haven’t got to your email yet, I am sorry).  This crowd of mine has needed my attention, we are the House of Sharts this week. 

Four of the kids have had fevers and the sharts this week, so I’ve had them home all week.  Yep, things are getting a little twitchy for yours truly.  Once again I am jealous of the Husband, for getting to leave this chamber of farts everyday and play with adults.  It doesn’t help that at least three of the kids cannot speak without shouting,  as I type Georgie is reading to herself on the lounge – I’m sure the neighbors are enjoying storytime too.

Georgie has been particularly unwell this month, having two seizures last week just to add to the mayhem.  Seeing your child like this, would crack the toughest nut.

So I’m guessing we’ll be back on the investigation/tests train again, since the last lot didn’t give us anything to go on with.  I like to mention that the staff in the triage at Goulburn Hospital are awesome.  They had so much on their plates that night, yet they still took the time to explain everything and even bring me sandwiches and tea, as I’d arrived at the hospital starving and not able to go get a drink.  She is fine now, she took a few days to come good this time.  And still managed to barrack for her Dad and sister at the City2Surf last weekend.

 

A huge thank you to everyone that support their fundraising effort.  They passed their goal of $500, raising $624 for the Autism Advisory and Support Service.   Lucy wore her medal for two days afterwards. 

That same weekend the news broke about the missing boy Daniel Morcombe, after all these years police finally have an arrest.  Their parents asked the nation to wear red on the Monday the suspect was to front court, to show support for Daniel.  So we did.

I know this has been a long post, and not my usual stuff but I didn’t want to bombard everyone with each topic in a separate post.  And I’m not done, I have one more thing to ask of you.

Do you shop at Coles?  If you happen to have some of those sports for schools vouchers around, would you consider sending them my way?  Our kids attend a special school, that doesn’t have as  many students as a mainstream school would have.  So if you have any spare it’d be great if they could be contributed to our little school, so they can get much-needed new equipment.  I’ll even send you a stamped envelope to do so, just message me.  If you are in the Goulburn area please drop them off with Brian Hill at the Goulburn Post, he has kindly offered to help collect them on my behalf.  (Thanks again Brian).

Oh and one last thing.  Due to our household mayhem, which I really haven’t filled you all in on here, the draw for the Baby Monitor was delayed.  So the winner is…..  Veronica Harvey.    Thank you to all my new and old followers for clicking on those little boxes, I really do appreciate your support and readship of my blog 🙂

 

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Filed under Autism, Daughters, Giveaways, Husbands, Too Much Information

Running for Autism

For those just tuning in, you may not realise that we have two children diagnosed with Autism and another with PDD-NOS.  This you can imagine is a hard task to manage at times. 

Families like ours rely heavily on services, services mostly provided by the Government, but one non government service that has been of great help to us, has been the Autism Advisory & Support Service.  This service receives no recurrent government funding, and relies on donations to offer their services free to families affected by Autism.  Services like these need to continue and need more funding. 

With this in mind my husband and eldest daughter are entering next month’s City2Surf, to raise money for this service.  Last month they climbed Pigeon House Mountain on the south coast of NSW as part of their preparation for the event.

At the time of posting they have managed to raise $340, towards their humble goal of $500.  We’d like to say a big thank you to all those who have donated so far, you know who you are 🙂  Some of you we haven’t even met in the flesh, yet you opened your wallets in support, that is just awesome.

There is only 12 days left till the big day, this week the bibs arrived – so it’s game on!

If you would like to support their run for Autism you will find a link to sponsor them over on the right or click here.  Thank you again to all our sponsors so far, we are truly touched. 

I’ve written some more about this in my column at the Goulburn Post, head on over and have a look-see 🙂

 

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Filed under Autism, Daughters, Husbands