Things I never thought I’d ever have to do, or even know about, until Autism came to town….
- Hide the salt shaker from my son, as he will pour it into hand and eat it.
- Not be able to have those pretty smelling toilet cleanser blocks in my loo, because he ate it. Yes he really did. He smelt lavender fresh for a day, and probably lucky not to have poisoned himself.
- That I would still be changing his poopy nappies at the age of ten.
- That some days I would have to watch the same dvd over and over again just to stop the tantrums.
- I would have to learn about, and become an expert on; early invention, occupational therapy, physiotherapy, speech therapy, disability grants, picture communication, the joys of applying for centrelink help and waiting lists, very long waiting lists.
- That some times I could turn the wrong direction at an intersection and not even know it, until the explosion comes from the backseat.
- That I would still be spoon-feeding my son at ten years of age.
- That I would have to learnt to communicate with someone who just doesn’t want to bother with communicating with you.
- And that I would be the only person who can understand what my son needs by his gestures/grunts/squeals and occasional words. Not even his father has worked it all out.
- That the only way he will sleep is to sedate him as he doesn’t need to sleep, but we do!
- I would have to join other parents in lobbying the government to recognise Autism on the PBS to lower the price of medications, that until a couple of years ago cost over one hundred dollars a month!
- That I could have a child who will cry with hunger while sitting in front of his dinner, because he refuses to pick it up and eat it without constant direction and assistance.
- That non-food items like: my make-up, the windex, phone charger cords, jewellery, shoes, you name it, just any old item that any house would have sitting around – would be an attractive chew toy for my son.
- Sedation is the only way I can have any test done on my son, he will not let doctors examine him and he is now too strong for him to be held down. Yes I never thought I’d have to hold my child down for a visit to the doctor.
- My handbag would be laden with tictacs, distraction toys, extra medications and a picture communication book, just to pop into the post office.
Right, big breath in aaannnnnnnd out. Needed that.
But despite all these apparent cons, and there are probably more, pages more that I could write, Tom is a beautiful little soul and often I know by the look in his eyes that he is in there wanting to come out, but is trapped by this awful affliction. I will get him out somehow. He is the reason I left a job I really loved doing. But I know what I love more. 🙂 It’s worth it.
I shall have to come back and write up some pro’s later on. Yes there are some. 🙂